Announcement from the EMIF project
Sign up for the IMI-EMIF symposium on April 18th in Brussels
IMI-EMIF would like to invite you to its public symposium: ‘Liberating Evidence from European Health Data – the Achievements and Challenges of a Five Year IMI Project: EMIF’ that is to be held on the 18th of April 2018 at Hotel Bloom, Brussels, Belgium.
This meeting will bring together a large variety of stakeholders to discuss the value of re-using healthcare data, how the new GDPR will affect the re-use of healthcare data, how we can better involve patients, a forward projection on the evolution of the healthcare data ecosystem, etc…. A high-level version of the agenda can be found here. Throughout the day, there will be ample opportunities for networking as we bring together stakeholders from other healthcare data consortia, representatives from IMI, the European Patient’s Forum and many others.
Participation in this event is free of charge, but we kindly ask you to register for the meeting online by April 1, 2018 at the latest by filling in this form. Please do not hesitate to register as spots are limited and registrations will be processed on a first come, first served basis.
More information on the venue can be found here. Please do not hesitate to contact us at firstname.lastname@example.org for more information.
This will be a great meeting at which to learn about important novel advances in our knowledge about diseases and treatments, from using big health data. The networks, architectures and tools that can be used for European scale research will also be demonstrated.
RAMIT vzw, a non-profit association, is a research platform established in 1992, with the support of the Ghent University. RAMIT’s main mission is performing and supporting International and National R&D in Medical Informatics and Telematics, nowadays also called eHealth.
From 1992 until 1998, RAMIT was supporting CEN TC/215 (European Committee for Standardization, Technical Committee eHealth) with Prof. Dr. G. De Moor as founding chairman and funded by the E.C. (DG Enterprise and Industry). RAMIT has participated successfully, often in a co-ordinating capacity, in more than 80 R&D projects in both the framework of EU-Research Programmes (since the second EC Framework Programme, AIM) and national R&D Programmes (e.g. IBBT). RAMIT’s R&D activities resulted in the creation of spin-offs, scientific associations and a world-wide network.
Since 2010, the president is Geert Thienpont.
RAMIT’s R&D projects are focusing on
- Ontology, Natural Language Processing, Semantic Interoperability;
- Electronic Health Records (EHR), Patient Health Records (PHR);
- Quality Labeling and Certification of EHR (PHR) systems;
- eLearning, eTesting & Computer Assisted Instruction;
- Web-based Association Studies and Clinical Trials;
- eHomeCare, Patient Tele-monitoring and Tele-medicine;
- Data Protection, Privacy, Security, Authentication;
- De-Identification, Pseudonymisation;
- EHR for Clinical Research, secondary use of EHR;
- Innovative business model for eHealth applications;
- eHealth Standards, Archetypes;
- Medical Statistics, Decision Support Systems;
- Web applications.
Today, RAMIT is (was recently) involved in following EU-funded projects.
Within the eStandards project, RAMIT acts as coordinator in close collaboration with HL7 (Catherine Chronaki), as scientific coordinator.
The eStandards CSA is proposed by HL7, CEN TC251, & IHE, leading Standards Organizations (SDOs), and is supported by the eHealth Network, ISO TC215, GS1, IHTSDO, IEEE11073, and IMIA to advance eHealth interoperability and global alignment of standards with seven objectives:
- Join up with Stakeholders in Europe and globally to build consensus on eHealth standards, accelerate knowledge-sharing, and promote wide adoption of standards.
- Deliver an evidence-based Roadmap for alignment, iterative consolidation, and broad acceptance of eStandards that is endorsed by SDOs, the eHealth Network, the providers, and the Industry.
- Contribute to the eHealth Interoperability Framework use cases focusing on clinical content modelling for different paradigms and embed a Quality Management System for interoperability testing and certification of eHealth systems.
- Collect evidence and provide guidance on the coexistence of competing or overlapping standards in large-scale eHealth deployment nationally and cross-border.
- Participate in EU/US MoU roadmap actions as the international patient summaries standard.
- Explore socio-economic aspects of eHealth interoperability, revisiting the language for user-vendor interaction that embodies ‘co-making’ in trust, collaboration and long-term engagement.
- Align across PHC-34 to nurture innovation, sustainability & growth under CEF and beyond contributing to Key actions of the Digital Agenda 2020.
The proposal’s ambition is to strengthen Europe’s voice and impact, while reinforcing the bridges established with the EU Patient Summary guideline across the Atlantic in Trillium Bridge and among MS with epSOS, eSENS, Antilope, and EXPAND. The eStandards Roadmap and associated evidence base, a white paper on the need for formal standards, and two guidelines addressing how to work with: (a) clinical content in profiles and (b) competing standards in large-scale eHealth deployments will be pragmatic steps toward alignment and convergence.