RAMIT vzw, a non-profit association, is a research platform established by Prof. Dr. Georges De Moor in 1992, with the support of the Ghent University. RAMIT’s main mission is performing and supporting International and National R&D in Medical Informatics and Telematics, nowadays also called eHealth.
From 1992 until 1998, RAMIT was supporting CEN TC/215 (European Committee for Standardization, Technical Committee eHealth) with Prof. Dr. G. De Moor as founding chairman and funded by the E.C. (DG Enterprise and Industry). RAMIT has participated successfully, often in a co-ordinating capacity, in more than 80 R&D projects in both the framework of EU-Research Programmes (since the second EC Framework Programme, AIM) and national R&D Programmes (e.g. IBBT). RAMIT’s R&D activities resulted in the creation of spin-offs, scientific associations and a world-wide network.
RAMIT’s R&D projects are focusing on
- Ontology, Natural Language Processing, Semantic Interoperability;
- Electronic Health Records (EHR), Patient Health Records (PHR);
- Quality Labeling and Certification of EHR (PHR) systems;
- eLearning, eTesting & Computer Assisted Instruction;
- Web-based Association Studies and Clinical Trials;
- eHomeCare, Patient Tele-monitoring and Tele-medicine;
- Data Protection, Privacy, Security, Authentication;
- De-Identification, Pseudonymisation;
- EHR for Clinical Research, secondary use of EHR;
- Innovative business model for eHealth applications;
- eHealth Standards, Archetypes;
- Medical Statistics, Decision Support Systems;
- Web applications.
Today, RAMIT is (was recently) involved in following EU-funded projects.
Within the eStandards project, RAMIT acts as coordinator in close collaboration with HL7 (Catherine Chronaki), as scientific coordinator.
The eStandards CSA is proposed by HL7, CEN TC251, & IHE, leading Standards Organizations (SDOs), and is supported by the eHealth Network, ISO TC215, GS1, IHTSDO, IEEE11073, and IMIA to advance eHealth interoperability and global alignment of standards with seven objectives:
- Join up with Stakeholders in Europe and globally to build consensus on eHealth standards, accelerate knowledge-sharing, and promote wide adoption of standards.
- Deliver an evidence-based Roadmap for alignment, iterative consolidation, and broad acceptance of eStandards that is endorsed by SDOs, the eHealth Network, the providers, and the Industry.
- Contribute to the eHealth Interoperability Framework use cases focusing on clinical content modelling for different paradigms and embed a Quality Management System for interoperability testing and certification of eHealth systems.
- Collect evidence and provide guidance on the coexistence of competing or overlapping standards in large-scale eHealth deployment nationally and cross-border.
- Participate in EU/US MoU roadmap actions as the international patient summaries standard.
- Explore socio-economic aspects of eHealth interoperability, revisiting the language for user-vendor interaction that embodies ‘co-making’ in trust, collaboration and long-term engagement.
- Align across PHC-34 to nurture innovation, sustainability & growth under CEF and beyond contributing to Key actions of the Digital Agenda 2020.
The proposal’s ambition is to strengthen Europe’s voice and impact, while reinforcing the bridges established with the EU Patient Summary guideline across the Atlantic in Trillium Bridge and among MS with epSOS, eSENS, Antilope, and EXPAND. The eStandards Roadmap and associated evidence base, a white paper on the need for formal standards, and two guidelines addressing how to work with: (a) clinical content in profiles and (b) competing standards in large-scale eHealth deployments will be pragmatic steps toward alignment and convergence.